A Research Participant Rights Booklet Prepared by INAEP, this material provides important information about protecting people participating in research (Research Participants), that is, those being researched. If you have been invited to participate in a research study but have not yet made a decision, this material can also help you decide whether or not to accept the invitation.
You will be able to better understand how research with human beings takes place in Brazil, know which competent bodies work to regulate, standardize, educate and provide security and autonomy for people who, in some way, are participating, have already participated or intend to participate in a search.
Don't worry! If you are in doubt about any subject, some important contacts and a glossary are available at the end of the booklet.
We understand that when we are about to participate in an activity that we are not aware of, in this case a survey, we can feel apprehensive. It is common for some questions to arise:
- Where to look for help?
- What are the risks?
- How will this research take place?
- Is it trustable?
It was questions like these that inspired the creation of the booklet. When all information is passed on in advance in a clear way, as well as the means of seeking help, feelings of insecurity are alleviated.
This guide was developed by INAEP specifically to support those who have already participated in or are considering participating in a research study and want to know everything about their rights and guarantees. Check it out:
If you have any questions or need guidance, contact Unicamp's CEP-CHS.